This week Nathan's dad stayed with him up at Seattle while I stayed home to take Michael to his doctor's appointment and spend some time with the kids for their first week of school.
Nathan started radiation. On Friday his dad dropped him off in Ellensburg on his way home and I took Nathan home for the weekend. It has meant that I've been able to spend more time at home and I have loved it. Poor Nathan has slept all weekend. It looks like radiation is going to be harder than chemo, which is too bad because there is a lot more of it to go through. Hopefully it is just because Nathan was worn out from entertaining his dad for a week and because he used his anti-nausea meds so sparingly. I've been trying to get him on a good schedule of alternating meds so hopefully with that and all the sleep he can get ahead of the nausea and have a better week.
The transplant team said they were very pleased with the results from his last round of tests and are starting to make plans to start the transplant. With any luck we could be back a few days after Christmas! I wish our doc here would have followed their recommendation and used that chemo regimen all along.
Two more weeks of cranial/spinal radiation and then on to total body radiation to prepare for transplant. Not looking forward to this, but it's good to be moving forward.
On Monday, Michael saw the orthopedic surgeon and his x-rays showed that the bone had moved back and was displaced again. Mike says he's not in pain, but I think he's just being tough as he's asked for pain medication all week. Usually, once a cast is on, my kids have never needed anything. Michael will go in this week for more x-rays and to see if he will need surgery.
I have LOVED being home with the kids for a week. It was weird because as we went through our new schedules I would think of how I'd do things differently next week and I'd have to keep reminding myself that I wasn't going to be here next week.
I'm not looking forward to going back tomorrow but I know the kids are in good hands. They are doing very well. They are happy and helping each other out. I hate missing out on this time with them, but it will pass and we will be a family again soon.
I think I'm a much better mom than I am wife. It's a good thing I have four months to practice!
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