Nathan's GVHD is very mild and is responding well to the steroids. I keep reminding myself to be thankful for that and to live in the present, not to worry about what will happen if he has chronic GVHD or gets a more severe form later. This experience is really helping me learn to live day by day and enjoy every moment. I look forward to the day when I will no longer be worried about future test results or GVHD.
Confession: I sometimes give Peter Skittles from his Halloween bag when I give Nathan his pills. Otherwise he tries to take the pills away from Nate.
| Nathan's morning meds: 15 1/2 pills, 1 liquid, 1 injection - most people are on A LOT more! |
| Michael took this picture of Derek and Peter |
Tonight Eliza told me all about the Thanksgiving dinner that was held in her kindergarten class. She thought it was amazing! She also didn't want to get off the phone. I loved hearing her cute voice. She is full of spark and I miss her. When I told her we would hopefully be home for Christmas she asked how long we could stay. I tried to explain to her, but I'm not sure if she understood, that, except for follow up appointments, we will be home for good.
I wish I could spend the first few months of being home doing nothing but holding my little kids and spending time with the older ones. I will need to remind myself not to get busy doing household things and consecrate this time for our family. Nathan will still be recovering and, before he goes back to work, I just want to spend time together.
Only one more month to go! I don't think I've been this excited to count down until Christmas since I was a little kid!
1 comment:
I can't wait until you guys come home, too! I hope you have a wonderful Thanksgiving week with the boys.
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